Autism Spectrum Disorder Caregiver Journey

Overview:

Parents / caregivers of children on the Autism Spectrum Disorder (ASD) experience face significant medical strain:

• 1.4x more likely to have a chronic medical diagnosis

• $46 Per Member Per Month greater medical costs

• 30% more likely to utilize ER for care

However, they also are more likely to be connected to the medical system:

• 1.1% more connected to preventative care

• 1.5x likely to utilize behavioral outpatient treatment

As the UX Research lead for a Fortune 50 health Insurer, I identified a powerful design intervention point:

HMW utilize predictive analytics to provide families with a likely ASD diagnosis earlier access to resources to reduce overall claims data (ER Utilization, etc) and get them access to resources sooner?

Process:

Multi-modal Research Project

• Began with 1:1 Qualitative interviewing and moderated concept testing

• n=20

• Quant surveys, n=5000

Methodologies:

1:1 qualitative interviews

Usability Testing

Workshop Facilitation

Journey Mapping

Rapid Prototyping

Result:

The results of this work included the launch of research informed:

• Parent / caregiver platform to provide earlier access to care

• Telehealth initiative

Participant Anecdotes:

• “Where was this when my son was getting diagnosed.

• “I can say without a doubt that this would have changed my entire families life